I am absolutely delighted and proud to be performing once again to support Joseph at his annual Charity Ball this year. The Joseph’s Goal charity was set up in October 2012, by Paul and Emma Kendrick, to raise funds for research into NKH, (Nonketotic Hyperglycinemia), the life-limiting genetic condition that their son, Joseph, was born with. NKH is caused by an excess of glycine on the brain.
But Joseph is resilient and is a fighter. Money is being raised to find better treatments and to hopefully find a cure for NKH, which is very rare, with only fifteen children still surviving in the UK, and less than five hundred worldwide.